Serum Thalassemia Prevention Federation -

Working for Thalassemia Patients and Creating Awareness on Thalassemia


STPF

Serum Thalassemia Prevention Federation (STPF) is an NGO dedicated to serving people affected with various forms of Thalassemia, the commonest single gene disorder in world population today and people affected by HIV-AIDS. Most notably amongst various forms of this genetic blood disorders is Thalassemia Major. For over a decade, Serum Thalassemia Prevention Federation is tirelessly working for the treatment & cure for this fatal genetic blood disorder "Thalassemia", creating awareness, enhancing the quality of life of Thalassemia patients and educating the medical professional, trait carriers, care giver and the public about Thalassemia. Serum Thalassemia Prevention Federation is one of the premier organizations working for the treatment of Thalassemia patients with medication. It is equipped to conduct Thalassemia Carrier Detection Tests, Counselling, and Genetic Testing. Here at Serum Thalassemia Prevention Federation, we generally conduct treatments for moderate & severe forms of Thalassemia which include Blood Transfusions, Medication, Chelation Therapy & Folic acid Supplements. More

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Thalassemia

Thalassemia is a genetic blood disorder. People with Thalassemia are unable to make enough hemoglobin, which causes severe anemia. Hemoglobin, which is found in red blood cells (RBC), carries oxygen to all parts of the body. When there is not enough hemoglobin in RBC, oxygen cannot get to all parts of the body and, thus, organs starved for oxygen and are unable to function properly.
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Treatment

Worldwide there are 350,000 births per year with serious hemoglobinopathies. Treatment for Thalassemia has dramatically improved. Today, patients can live full lives with careers and children of their own. All patients should undergo at least an annual comprehensive treatment counselling during which, recommendations are summarized after consultation with multiple specialists.
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Living with Thalassemia

Most families find out about their child's diagnosis shortly after birth. Even for families who maybe familiar with Thalassemia, might face difficult time adjusting to a new diagnosis with the expectation that the child to reach normal developmental milestones. The key to successful management of Thalassemia is the incorporation of psychological wellness & counseling along with medical care.
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Service


Serum Thalassemia Prevention Federation is one of the largest Thalassemia programme in the eastern India. Established in 2006 to deliver comprehensive care to the growing number of Thalassemics, the Federation has more than 5000 patients on active follow-up and over 100000 patients visits every year. The Federation is also at the forefront of creating awareness and research to develop new treatments for Thalassemia. Over a decade of its existence, Serum Thalassemia Prevention Federation has had a major impact on the care & awareness of Thalassemia both regionally & nationally.



Best-in-class Service


Serum Thalassemia Prevention Federation

Thalassemia Awareness Camp

Serum Thalassemia Prevention Federation organises Thalassemia Awareness & Testing camps almost every months in different parts of India. It is estimated that 5 crore Indians are carriers of Thalassemia & almost 10,000 Thalassemia Major are born every year.

Thalassemia Trait

Serum Thalassemia Prevention Federation performs Thalassemia trait testing that involves having a single blood sample drawn and which can be done during a doctor's appointment, genetic counseling session, or at community health fairs organised from time to time.

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Blood Donation Camps

Maintaining a safe & adequate blood supply is very important since a severe form of Thalassemia require blood transfusions as often as every two weeks. STPF organizes blood donation camps regularly to help Thalassemics. Regular blood transfusions provide Thalassemia patients with the RBC they need to survive.

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Blood Transfusion

Thalassemia major children cannot make normal hemoglobin level needed to produce healthy RBC and so they need regular blood transfusions. Without regular blood transfusions support, about 85% of children with β-Thalassemia major will die by the age of 5 years. The survival of Thalassemics depends on life-long repeated blood transfusion & costly medicines.

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Chelation Therapy

Chelation therapy is the removal of excess iron from the body with special drugs. Thalassemics suffer from anemia & iron overload at the same time and cannot tolerate phlebotomy (blood donation). STPF provides support for patients & their families with Thalassemia.

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DNA Testing

Because of the enormous diversity in clinical severity of Thalassemia patients, STPF performs complete DNA testing prior to commencement of treatment to determine prognosis, appropriate therapy & family counseling.

Facilities


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About


News

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There are about 240 million carriers of β-Thalassemia worldwide, i.e., 1.5% of world population, and in India alone, the number is approximately 30million. The burden of hemoglobinopathies in India is high with nearly 12,000 infants being born every year with a severe disorder.

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A team of researchers led by scientists at Weill Cornell Medical College has designed what appears to be a powerful gene therapy strategy that can treat both beta-Thalassemia disease and sickle cell anemia. They have also developed a test to predict patient response before treatment.

Testimonials

  • "Excellent Support"

    "My daughter is a Thalassemic. My experience at STPF was superior and well above medical treatment. The physicians and staff treats my daughter with unbelievable care and compassion. Their attention to ensuring her well-being was exceptional."

    - Radhika Chakraborty,

    mother of Jyotika, 12yrs

  • "Wonderful Team"

    "The days and nights became easier because of the wonderful care I received from the Doctors, Nurses, Aids and other staff member."

    -Shamik Ghosh,

    Thalassemic, 25yrs

  • "Fully Satisfied"

    "I was suffering from Thalassemia Major since 3 months age. I was treated at the STPF very well with medical follow-up, regular blood transfusions every 3 weeks, vaccinations etc... I had my bone marrow transplantation and now I lead a normal life."

    -Saira Banerjee,

    18 yrs, Thalassemic cure patient

Programme

Since it's inception in 2006, Serum Thalassemia Prevention Federation has organised numerous Thalassemia Awareness & Blood Donation Camps, Conferences, Seminars, Training & Workshops in the fields of Thalassemia & HIV. The Federation continuously organises social & cultural activities to create awareness amongst common masses so that these two deadly diseases can be prevented. Every year Serum Thalassemia Prevention Federation organises three massive awareness programmes, viz., May 8: World Thalassemia Day, August 15: Freedom from Thalassemia & December 1: World AIDS Day (organised on the 1st Sunday of December).